Welcome to the Greater Rochester Spina Bifida Association (GRSBA) web site, thank you for your interest.

GRSBA was founded in 1972 and continues to thrive in the Rochester and Finger Lakes regions of New York. Our Board of Directors meet quarterly and the meetings are open to the public. We offer individual and family supports as well as social and educational events. Our Association works closely with many community agencies including the Kirch clinic at the Golisano Children’s hospital at Strong Memorial Hospital in Rochester.

Whether you are an adult with Spina Bifida or the parent of a newborn who has Spina Bifida, please consider contacting GRSBA or joining us for our next Board of Directors meeting or event.

Once again, Welcome to our Association site.

Doug Pease, President
Board of Directors
Greater Rochester (NY) Spina Bifida Association

Our Mission Statement

We are a not-for-profit organization devised of individuals with Spina Bifida, family and other community members who work together to promote the physical, emotional and social well-being of people with Spina Bifida and other disabilities. We provide presentations, programs and social events and services in the greater Rochester New York region. We work to promote outreach, education and advocacy.